Hi, I’m Samantha Smith, I’m a 31 year old single mother of two fantastic children from Greater Manchester, UK.
I owned a young business and worked as a Psychotherapist and writer, until recently when my life was turned upside down and I learnt that my brain and spinal cord are being crushed under the weight of my skull. I became too ill to continue the career I had worked so hard for.
In December 2016, after a lifetime of pain and 10 years of tests, misdiagnosis’ and ill health, I was finally diagnosed with Ehlers Danlos Syndrome (EDS).
In my case, this causes extreme widespread pain, daily dislocations, cardiac abnormalities and multiple other illnesses. Despite these issues and constant pain, I remained largely independent until my health rapidly declined in January 2017.
A few months later, specialists discovered that my spine was collapsing due to the faulty connective tissues (EDS). My spinal cord and brain stem were being crushed by my unstable vertebra. I would die without Neurosurgeries.
The UK has no one qualified to do the complex surgery that will keep me alive. I must now fundraise for my own life… and for my babies to have the mummy they so desperately need and deserve.